Agitation and Restlessness in the Final Days: Information for patients and carers

Confusion, restlessness and agitation are common symptoms at the end of life. 

Often the cause is due to a combination of factors, and the first question is whether someone is now in their final days.  Agitation and confusion may be a sign that life is coming to an end and the best approach may be to focus on keeping the person calm so that good memories are created.

Do consider whether physical causes of discomfort are contributing such as pain, nausea, constipation, difficulty passing urine, infection, itching.

Your palliative care team can help to establish if there is a cause which can be easily treated or whether this is part of the dying process.

An approach to care:

  • Try non-medication methods such as reassurance and presence of loved ones, familiar surroundings, objects and music
  • Medication such as haloperidol, levopromazine and midazolam are commonly used to help someone feel calmer
  • Medications are started at the lowest doses
  • Deeper sedation may be needed if agitation worsens
  • The intention is to relieve suffering and symptoms, not to hasten death

Recommended Resources

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Close

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Please call the advice line when:

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There are 10 comfortable rooms, all with Freeview TV, phones, internet access, en-suites, as well as their own private patios, overlooking our beautiful gardens. One of the rooms is specifically designed for young people and their families. 

Information for visitors to the Inpatient Unit (PDF)
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T. 01245 455478

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Close

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T. 0800 0184 724

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T. 0300 1310 111

W. https://providehealth.org.uk/tissue-viability-service/

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Please complete the SystmOne referral form.

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Close

The support group is a way to learn more about living with a lung condition and share your experiences and stories with others.

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Close

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Use the website address above to find your local services.

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Close

Information and support about stoma care. There is a 24 hour helpline.

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Close

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Farleigh Hospice Clinical Advice Line
Close

The advice line provides access to a member of the hospice team who is able to give advice on symptoms, nursing care and other needs relating to life-limiting/palliative care needs and available between 8.00am and 8.00pm, 7 days a week.

Please call the advice line when:

  • advice is needed regarding hospice care and support
  • advice or information is needed regarding the management of symptoms
  • concerns about symptoms that need to be addressed before your next scheduled visit/appointment
  • reassurance is required for someone who is anxious about a change in their condition
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Close

The specialist Inpatient Unit (IPU) is located in the hospice building in Broomfield, Chelmsford. It provides short-term care for patients needing symptom control, respite, rehabilitation, or end of life care.

There are 10 comfortable rooms, all with Freeview TV, phones, internet access, en-suites, as well as their own private patios, overlooking our beautiful gardens. One of the rooms is specifically designed for young people and their families. 

Information for visitors to the Inpatient Unit (PDF)
Farleigh Hospice Specialist Community Support
Close

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T. 01245 455478

The team include Clinical Nurse Specialists, Registered Nurses and Health Care Assistants. They are experts in pain and symptom control and provide:

  • Specialist Physiotherapy
  • Occupational Therapy
  • Complementary Therapy
  • Social Work
  • Counselling 
  • Family Support Practitioners
Hospice Rapid Access Service (HRAS)
Close

The Hospice Rapid Access Service team is a 24 hour services for people with a primary health need, who are rapidly deteriorating, and likely to be entering the terminal/palliative care phase of their illness. 

Havens Hospices, St Lukes Hospice and Farleigh Hospice work together as a collaborative to ensure consistency of care across all of Mid and South Essex.

The Hospices will assess the care needs of the patient and source care that meets the holistic needs of the patient.  This could be care in the home, on an in-patient unit, or in a Nursing Home.

Havens Hospices – havenshospices.rapidaccess@nhs.net (Southend, Castle Point and Rochford)

Farleigh Hospice -  contactteam.fh@nhs.net (Chelmsford, Maldon and the Dengie, Braintree and the surrounding areas)

St Luke’s Hospice - Stlukes.oneresponse@nhs.net (Basildon and Thurrock)

Ileostomy and Internal Pouch Association (IA)
Close

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T. 0800 0184 724

W. https://iasupport.org/about/about-ia/

Ileostomy and Internal Pouch Association, known as IA, has been specialising in supporting people living with an ileostomy.

IA has not only an extensive network of local groups across the UK and Ireland but also the majority of volunteers are living life after surgery.

Little Havens Hospice
Close

Little Havens provides specialist care and support for babies, children and young people requiring specialist in-patient care for symptom management, respite and end of life care.

LymphConnect
Close

LymphConnect is an online platform developed to help manage lymphoedema or lipoedema, understand more about the condition, share experiences and get support and advice.

 

Lymphoedema Service
Close

The team provides clinical expertise, support and practical help for those with Lymphoedema and live across Mid Essex.

Tissue Viability Service: PROVIDE
Close

Tissue Viability Service: PROVIDE

T. 0300 1310 111

W. https://providehealth.org.uk/tissue-viability-service/

This service is for any persons over the age of 18 and supports the management of complex wound care, via clinic based appointments, or homevisits depending on the need of the service user.

Please complete the SystmOne referral form.

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