Caring for a breathless patient at home

Breathlessness is a very frightening symptom - and living with a breathless person can be very stressful.

Having some control over how you breathe, managing panic and some practical ways to cope with everyday activities can really help.

Anxiety and breathlessness are very linked - breathlessness can make you anxious - and when you are anxious you breathe more quickly and less efficiently.

Top tips
  • Control your breath - watch the Managing breathlessness video from St Christopher's 
  • Think about position to get maximum air into your lungs e.g. leaning forward may really help
  • A flow of air by your nose from a hand-held fan or open window can really help
  • A cool wet flannel over your nose may help
  • What helps you to calm - music, TV, relaxation - try some of the guided meditations below
  • Eat small regular meals that are soft and don't need too much chewing
  • Practical tip - a towelling dressing gown instead of drying with a towel can save energy after a shower
  • Do look at the helpful resources section below and review our page on Anxiety towards the end of life
Panic attacks

Think of 4 F's ! Fan, Flop muscles, Forward lean, Focus on long breath out

St Christopher's have also produced this video on how to manage a panic attack

To help you calm

St Margaret's Hospice have produced some brief videos to support guided relaxation and meditation

Helpful resources

St Christopher's have produced 4 very short videos (each less than 4 minutes) 

Meet and share with other people how to live better with breathlessness, you could try a Breathe Easy group if there is one near you

Recommended Resources

St Margaret's Hospice Care - Guided meditation

Published 10th April 2023

St Christopher's - Managing breathlessness

Published 1st April 2023

Hull York Medical School - A guide to living well with breathlessness

Published 1st January 2023

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Related Services

Hospices

Adult Carer Core Support
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Adult Carer Core Support

T. 0300 303 1555

W. https://www.carersfirst.org.uk/

This free service has been commissioned to support adult carers. 

The offer includes:

  • One to one information and support to carers 
  • Support via phone, text, email or face to face visits including home visits
  • Groups and activities for carers
  • Help to get Carers Trust grants
  • Referrals to carefree breaks
  • Free SIM cards

The offer in Southend includes funding for breaks for carers, support to help carers to access their own appointments and one-off respite break funding.

Bliss
Close

Bliss offers a wide range of free services for the families of premature and sick babies including a video call support service.

Breatheasy groups
Close

The support group is a way to learn more about living with a lung condition and share your experiences and stories with others.

British Lymphology Society
Close

The British Lymphology Society provides a directory of Lymphoedema treatment services.

Use the website address above to find your local services.

Children's Community Nursing Service: Provide CIC
Close

Children's Community Nursing Service: Provide CIC

T. 0300 1310 111

The Children's Community Nursing Service team provides nursing care for children and young people with a health need including palliative care in their own home or the community and includes training and support for families and carers. The primary aim is to prevent hospital admission, attendance and length of hospital stay through supporting a family to care for their child at home or within their local community.

This service covers Mid Essex excluding Halstead.

Colostomy UK
Close

Information and support about stoma care. There is a 24 hour helpline.

Crohns and Colitis UK
Close

Crohns and Colitis UK provides information about and helps to find support from others in the Crohn’s and Colitis community.

Farleigh Hospice Clinical Advice Line
Close

The advice line provides access to a member of the hospice team who is able to give advice on symptoms, nursing care and other needs relating to life-limiting/palliative care needs and available between 8.00am and 8.00pm, 7 days a week.

Please call the advice line when:

  • advice is needed regarding hospice care and support
  • advice or information is needed regarding the management of symptoms
  • concerns about symptoms that need to be addressed before your next scheduled visit/appointment
  • reassurance is required for someone who is anxious about a change in their condition
Farleigh Hospice Inpatient Unit
Close

The specialist Inpatient Unit (IPU) is located in the hospice building in Broomfield, Chelmsford. It provides short-term care for patients needing symptom control, respite, rehabilitation, or end of life care.

There are 10 comfortable rooms, all with Freeview TV, phones, internet access, en-suites, as well as their own private patios, overlooking our beautiful gardens. One of the rooms is specifically designed for young people and their families. 

Information for visitors to the Inpatient Unit (PDF)
Farleigh Hospice Specialist Community Support
Close

Farleigh Hospice Specialist Community Support

T. 01245 455478

The team include Clinical Nurse Specialists, Registered Nurses and Health Care Assistants. They are experts in pain and symptom control and provide:

  • Specialist Physiotherapy
  • Occupational Therapy
  • Complementary Therapy
  • Social Work
  • Counselling 
  • Family Support Practitioners
Frailty Virtual Ward
Close

The team provides clinical service for palliative care patients in their own home.

Hub hours for referrals are Monday to Friday, 8.30am to 4.30pm.

Hospice Rapid Access Service (HRAS)
Close

The Hospice Rapid Access Service team is a 24 hour services for people with a primary health need, who are rapidly deteriorating, and likely to be entering the terminal/palliative care phase of their illness. 

Havens Hospices, St Lukes Hospice and Farleigh Hospice work together as a collaborative to ensure consistency of care across all of Mid and South Essex.

The Hospices will assess the care needs of the patient and source care that meets the holistic needs of the patient.  This could be care in the home, on an in-patient unit, or in a Nursing Home.

Havens Hospices – havenshospices.rapidaccess@nhs.net (Southend, Castle Point and Rochford)

Farleigh Hospice -  contactteam.fh@nhs.net (Chelmsford, Maldon and the Dengie, Braintree and the surrounding areas)

St Luke’s Hospice - Stlukes.oneresponse@nhs.net (Basildon and Thurrock)

Ileostomy and Internal Pouch Association (IA)
Close

Ileostomy and Internal Pouch Association (IA)

T. 0800 0184 724

W. https://iasupport.org/about/about-ia/

Ileostomy and Internal Pouch Association, known as IA, has been specialising in supporting people living with an ileostomy.

IA has not only an extensive network of local groups across the UK and Ireland but also the majority of volunteers are living life after surgery.

Little Havens Hospice
Close

Little Havens provides specialist care and support for babies, children and young people requiring specialist in-patient care for symptom management, respite and end of life care.

LymphConnect
Close

LymphConnect is an online platform developed to help manage lymphoedema or lipoedema, understand more about the condition, share experiences and get support and advice.

 

Lymphoedema Service
Close

The team provides clinical expertise, support and practical help for those with Lymphoedema and live across Mid Essex.

Macmillan Cancer Support
Close

Macmillan provide cancer information, support and help everyone with cancer live life as fully as they can.

Visit the website to get help with paying bills, advice on benefits or treatment, or to just chat.

Marie Curie
Close

Marie Curie

T. 0800 090 2309

W. https://www.mariecurie.org.uk/

Marie Curie provide support for patients and carers through terminal illness.

Find information and support through the telephone helpline and online chat via their website.

Other services include Marie Curie nurses, Hospice care, helper and companion services.

Rainbow Trust
Close

Rainbow Trust Children’s Charity supports families who have a child aged 0 to18 years with a life-threatening or terminal illness.

Tissue Viability Service: PROVIDE
Close

Tissue Viability Service: PROVIDE

T. 0300 1310 111

W. https://providehealth.org.uk/tissue-viability-service/

This service is for any persons over the age of 18 and supports the management of complex wound care, via clinic based appointments, or homevisits depending on the need of the service user.

Please complete the SystmOne referral form.

Together for Short Lives
Close

Together for Short Lives have a helpline and family support hub to provide help and advice for those caring for a child with a serious illness.

Young lives vs Cancer
Close

Young lives vs Cancer support young people under 25 with cancer, and their families, to get the help they need during their cancer treatment and beyond, including bereaved families living with emotional distress. 

Palliative care teams

Adult Carer Core Support
Close

Adult Carer Core Support

T. 0300 303 1555

W. https://www.carersfirst.org.uk/

This free service has been commissioned to support adult carers. 

The offer includes:

  • One to one information and support to carers 
  • Support via phone, text, email or face to face visits including home visits
  • Groups and activities for carers
  • Help to get Carers Trust grants
  • Referrals to carefree breaks
  • Free SIM cards

The offer in Southend includes funding for breaks for carers, support to help carers to access their own appointments and one-off respite break funding.

Bliss
Close

Bliss offers a wide range of free services for the families of premature and sick babies including a video call support service.

Breatheasy groups
Close

The support group is a way to learn more about living with a lung condition and share your experiences and stories with others.

British Lymphology Society
Close

The British Lymphology Society provides a directory of Lymphoedema treatment services.

Use the website address above to find your local services.

Children's Community Nursing Service: Provide CIC
Close

Children's Community Nursing Service: Provide CIC

T. 0300 1310 111

The Children's Community Nursing Service team provides nursing care for children and young people with a health need including palliative care in their own home or the community and includes training and support for families and carers. The primary aim is to prevent hospital admission, attendance and length of hospital stay through supporting a family to care for their child at home or within their local community.

This service covers Mid Essex excluding Halstead.

Colostomy UK
Close

Information and support about stoma care. There is a 24 hour helpline.

Crohns and Colitis UK
Close

Crohns and Colitis UK provides information about and helps to find support from others in the Crohn’s and Colitis community.

Farleigh Hospice Clinical Advice Line
Close

The advice line provides access to a member of the hospice team who is able to give advice on symptoms, nursing care and other needs relating to life-limiting/palliative care needs and available between 8.00am and 8.00pm, 7 days a week.

Please call the advice line when:

  • advice is needed regarding hospice care and support
  • advice or information is needed regarding the management of symptoms
  • concerns about symptoms that need to be addressed before your next scheduled visit/appointment
  • reassurance is required for someone who is anxious about a change in their condition
Farleigh Hospice Inpatient Unit
Close

The specialist Inpatient Unit (IPU) is located in the hospice building in Broomfield, Chelmsford. It provides short-term care for patients needing symptom control, respite, rehabilitation, or end of life care.

There are 10 comfortable rooms, all with Freeview TV, phones, internet access, en-suites, as well as their own private patios, overlooking our beautiful gardens. One of the rooms is specifically designed for young people and their families. 

Information for visitors to the Inpatient Unit (PDF)
Farleigh Hospice Specialist Community Support
Close

Farleigh Hospice Specialist Community Support

T. 01245 455478

The team include Clinical Nurse Specialists, Registered Nurses and Health Care Assistants. They are experts in pain and symptom control and provide:

  • Specialist Physiotherapy
  • Occupational Therapy
  • Complementary Therapy
  • Social Work
  • Counselling 
  • Family Support Practitioners
Frailty Virtual Ward
Close

The team provides clinical service for palliative care patients in their own home.

Hub hours for referrals are Monday to Friday, 8.30am to 4.30pm.

Hospice Rapid Access Service (HRAS)
Close

The Hospice Rapid Access Service team is a 24 hour services for people with a primary health need, who are rapidly deteriorating, and likely to be entering the terminal/palliative care phase of their illness. 

Havens Hospices, St Lukes Hospice and Farleigh Hospice work together as a collaborative to ensure consistency of care across all of Mid and South Essex.

The Hospices will assess the care needs of the patient and source care that meets the holistic needs of the patient.  This could be care in the home, on an in-patient unit, or in a Nursing Home.

Havens Hospices – havenshospices.rapidaccess@nhs.net (Southend, Castle Point and Rochford)

Farleigh Hospice -  contactteam.fh@nhs.net (Chelmsford, Maldon and the Dengie, Braintree and the surrounding areas)

St Luke’s Hospice - Stlukes.oneresponse@nhs.net (Basildon and Thurrock)

Ileostomy and Internal Pouch Association (IA)
Close

Ileostomy and Internal Pouch Association (IA)

T. 0800 0184 724

W. https://iasupport.org/about/about-ia/

Ileostomy and Internal Pouch Association, known as IA, has been specialising in supporting people living with an ileostomy.

IA has not only an extensive network of local groups across the UK and Ireland but also the majority of volunteers are living life after surgery.

Little Havens Hospice
Close

Little Havens provides specialist care and support for babies, children and young people requiring specialist in-patient care for symptom management, respite and end of life care.

LymphConnect
Close

LymphConnect is an online platform developed to help manage lymphoedema or lipoedema, understand more about the condition, share experiences and get support and advice.

 

Lymphoedema Service
Close

The team provides clinical expertise, support and practical help for those with Lymphoedema and live across Mid Essex.

Macmillan Cancer Support
Close

Macmillan provide cancer information, support and help everyone with cancer live life as fully as they can.

Visit the website to get help with paying bills, advice on benefits or treatment, or to just chat.

Marie Curie
Close

Marie Curie

T. 0800 090 2309

W. https://www.mariecurie.org.uk/

Marie Curie provide support for patients and carers through terminal illness.

Find information and support through the telephone helpline and online chat via their website.

Other services include Marie Curie nurses, Hospice care, helper and companion services.

Rainbow Trust
Close

Rainbow Trust Children’s Charity supports families who have a child aged 0 to18 years with a life-threatening or terminal illness.

Tissue Viability Service: PROVIDE
Close

Tissue Viability Service: PROVIDE

T. 0300 1310 111

W. https://providehealth.org.uk/tissue-viability-service/

This service is for any persons over the age of 18 and supports the management of complex wound care, via clinic based appointments, or homevisits depending on the need of the service user.

Please complete the SystmOne referral form.

Together for Short Lives
Close

Together for Short Lives have a helpline and family support hub to provide help and advice for those caring for a child with a serious illness.

Young lives vs Cancer
Close

Young lives vs Cancer support young people under 25 with cancer, and their families, to get the help they need during their cancer treatment and beyond, including bereaved families living with emotional distress. 

Pharmacies

Breatheasy groups
Close

The support group is a way to learn more about living with a lung condition and share your experiences and stories with others.

British Lymphology Society
Close

The British Lymphology Society provides a directory of Lymphoedema treatment services.

Use the website address above to find your local services.

Colostomy UK
Close

Information and support about stoma care. There is a 24 hour helpline.

Crohns and Colitis UK
Close

Crohns and Colitis UK provides information about and helps to find support from others in the Crohn’s and Colitis community.

Farleigh Hospice Clinical Advice Line
Close

The advice line provides access to a member of the hospice team who is able to give advice on symptoms, nursing care and other needs relating to life-limiting/palliative care needs and available between 8.00am and 8.00pm, 7 days a week.

Please call the advice line when:

  • advice is needed regarding hospice care and support
  • advice or information is needed regarding the management of symptoms
  • concerns about symptoms that need to be addressed before your next scheduled visit/appointment
  • reassurance is required for someone who is anxious about a change in their condition
Farleigh Hospice Inpatient Unit
Close

The specialist Inpatient Unit (IPU) is located in the hospice building in Broomfield, Chelmsford. It provides short-term care for patients needing symptom control, respite, rehabilitation, or end of life care.

There are 10 comfortable rooms, all with Freeview TV, phones, internet access, en-suites, as well as their own private patios, overlooking our beautiful gardens. One of the rooms is specifically designed for young people and their families. 

Information for visitors to the Inpatient Unit (PDF)
Farleigh Hospice Specialist Community Support
Close

Farleigh Hospice Specialist Community Support

T. 01245 455478

The team include Clinical Nurse Specialists, Registered Nurses and Health Care Assistants. They are experts in pain and symptom control and provide:

  • Specialist Physiotherapy
  • Occupational Therapy
  • Complementary Therapy
  • Social Work
  • Counselling 
  • Family Support Practitioners
Hospice Rapid Access Service (HRAS)
Close

The Hospice Rapid Access Service team is a 24 hour services for people with a primary health need, who are rapidly deteriorating, and likely to be entering the terminal/palliative care phase of their illness. 

Havens Hospices, St Lukes Hospice and Farleigh Hospice work together as a collaborative to ensure consistency of care across all of Mid and South Essex.

The Hospices will assess the care needs of the patient and source care that meets the holistic needs of the patient.  This could be care in the home, on an in-patient unit, or in a Nursing Home.

Havens Hospices – havenshospices.rapidaccess@nhs.net (Southend, Castle Point and Rochford)

Farleigh Hospice -  contactteam.fh@nhs.net (Chelmsford, Maldon and the Dengie, Braintree and the surrounding areas)

St Luke’s Hospice - Stlukes.oneresponse@nhs.net (Basildon and Thurrock)

Ileostomy and Internal Pouch Association (IA)
Close

Ileostomy and Internal Pouch Association (IA)

T. 0800 0184 724

W. https://iasupport.org/about/about-ia/

Ileostomy and Internal Pouch Association, known as IA, has been specialising in supporting people living with an ileostomy.

IA has not only an extensive network of local groups across the UK and Ireland but also the majority of volunteers are living life after surgery.

Little Havens Hospice
Close

Little Havens provides specialist care and support for babies, children and young people requiring specialist in-patient care for symptom management, respite and end of life care.

LymphConnect
Close

LymphConnect is an online platform developed to help manage lymphoedema or lipoedema, understand more about the condition, share experiences and get support and advice.

 

Lymphoedema Service
Close

The team provides clinical expertise, support and practical help for those with Lymphoedema and live across Mid Essex.

Tissue Viability Service: PROVIDE
Close

Tissue Viability Service: PROVIDE

T. 0300 1310 111

W. https://providehealth.org.uk/tissue-viability-service/

This service is for any persons over the age of 18 and supports the management of complex wound care, via clinic based appointments, or homevisits depending on the need of the service user.

Please complete the SystmOne referral form.

Cancer services

British Lymphology Society
Close

The British Lymphology Society provides a directory of Lymphoedema treatment services.

Use the website address above to find your local services.

LymphConnect
Close

LymphConnect is an online platform developed to help manage lymphoedema or lipoedema, understand more about the condition, share experiences and get support and advice.

 

Lymphoedema Service
Close

The team provides clinical expertise, support and practical help for those with Lymphoedema and live across Mid Essex.

Macmillan Cancer Support
Close

Macmillan provide cancer information, support and help everyone with cancer live life as fully as they can.

Visit the website to get help with paying bills, advice on benefits or treatment, or to just chat.

Marie Curie
Close

Marie Curie

T. 0800 090 2309

W. https://www.mariecurie.org.uk/

Marie Curie provide support for patients and carers through terminal illness.

Find information and support through the telephone helpline and online chat via their website.

Other services include Marie Curie nurses, Hospice care, helper and companion services.

Tissue Viability Service: PROVIDE
Close

Tissue Viability Service: PROVIDE

T. 0300 1310 111

W. https://providehealth.org.uk/tissue-viability-service/

This service is for any persons over the age of 18 and supports the management of complex wound care, via clinic based appointments, or homevisits depending on the need of the service user.

Please complete the SystmOne referral form.

Related Articles

7th June 2024

Anxiety towards the end of life: Information for patients and carers

27th February 2023

Caring at home - practical tips

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