Lymphoedema: Information for patients and carers

 

Understanding lymphoedema

The lymphatic system is a network of channels and glands (lymph nodes) throughout the body that help fight infection and remove excess fluid.

Damage to the lymphatic system can be caused by cancer, treatment to lymph nodes (eg lymph node removal or radiotherapy), deep vein thromboses (blood clots) or skin infections. This damage can then lead to swelling in the body's tissues (lymphoedema).

Lymphoedema can affect any part of the body, but usually develops in the arms or legs.

Early identification and treatment of lymphoedema can prevent it from getting worse.

Treating lymphoedema

There's no cure for lymphoedema, but it's usually possible to control the main symptoms using techniques to reduce fluid build-up and stimulate the flow of fluid through the lymphatic system. These techniques are listed below:

Skin care
  • Keep skin clean – wash daily with a mild, non-perfumed soap or soap substitute  
  • Keep skin supple and well-moisturised with a daily application of a bland, non-perfumed moisturising cream  
  • Protect from sunburn with high factor cream 
  • Use insect repellent in areas of risk and consider antihistamine creams or tablets if there is a reaction to the bite.
  • Avoid walking barefoot or wearing shoes that cause blisters  
  • Check between toes or skin folds regularly and treat any fungal infection  
  • Clean any cuts or scratches with antiseptic 
  • If there are signs of cellulitis (a bacterial infection of the skin) medical help should be sought quickly for treatment with antibiotics. Symptoms of cellulitis include redness/warmth/pain in the affected skin +/- a fever.
Movement

Simple activities like walking, stretching and heel-raises will help the lymphatic system.

Compression Therapy

Compression garments (socks/stockings and sleeves), bandaging or Velcro wraps to compress the affected areas. This helps drain fluid and reduce swelling.

Manual Lymphatic Drainage (MLD)

The use of massage techniques to move fluid through the lymphatic system. This may be done by a specialist practitioner or a simplified version may be taught to patients or carers.

LymphConnect is an online community to support people with lymphoedema

Please also see this 3 minute video 'About Lymphoedema' by ComptonCare & the British Lymphology Society 

Recommended Resources

LymphConnect - Stages of Lymphoedema

Published 26th September 2023

British Lymphology Society

Published 26th September 2023

NHS UK - Lymphoedema

Published 29th March 2023

Share

Related Services

Lymphoedema services

British Lymphology Society
Close

British Lymphology Society

W. https://www.thebls.com/directory/london

The British Lymphology Society provides a directory of Lymphoedema treatment services.

Use the website address above to find your local services.

rapid access

Hospice Rapid Access Service (HRAS)
Close

Hospice Rapid Access Service (HRAS)

T. 01702 220350

W. https://www.havenshospices.org.uk/fair-havens/rapid-access/

The Hospice Rapid Access Service team is a 24 hour services for people with a primary health need, who are rapidly deteriorating, and likely to be entering the terminal/palliative care phase of their illness. 

Havens Hospices, St Lukes Hospice and Farleigh Hospice work together as a collaborative to ensure consistency of care across all of Mid and South Essex.

The Hospices will assess the care needs of the patient and source care that meets the holistic needs of the patient.  This could be care in the home, on an in-patient unit, or in a Nursing Home.

Havens Hospices – havenshospices.rapidaccess@nhs.net (Southend, Castle Point and Rochford)

Farleigh Hospice -  contactteam.fh@nhs.net (Chelmsford, Maldon and the Dengie, Braintree and the surrounding areas)

St Luke’s Hospice - Stlukes.oneresponse@nhs.net (Basildon and Thurrock)

St Francis Hospice Pastoral Care
Close

St Francis Hospice Pastoral Care

T. 01708 753319 ext. 2288

W. https://www.sfh.org.uk/carers-family-loved-ones

Support for people of all faiths and none are available  for patients, family, friends, and carers and the team are open and inclusive to all wishing to receive spiritual care.

test group for 2 different categories

St Francis Hospice Inpatient Unit
Close

St Francis Hospice Inpatient Unit

T. 01708 723593 / 01708 753319 ext. 2317

W. https://www.sfh.org.uk/the-hospice-ward

For patients requiring specialist in-patient care for symptom management and end of life care.

Feedback