Mouth care: Information for patients and carers

Good mouth care is crucial. Mouth problems are very uncomfortable and can have a negative impact on someone’s quality of life, including their ability to eat, speak and swallow.  

Mouths easily become sore and dry with advancing illness, and especially after repeated antibiotics and chemotherapy.

Top tips on mouth care
  • Keep the mouth and lips clean and moist if possible
  • Ideally provide mouth care when the person is semi-upright, to avoid choking. If that’s not possible, make sure fluid isn’t building up in their mouth as you give mouth care
  • Brush teeth twice a day, and use a very soft toothbrush for a sore mouth - childrens tootbrushes and toothpaste may help. Use a non-foaming toothpaste for people who have difficulty swallowing
  • Take out and clean dentures or dental plates at least once a day and rinse them after eating
Dry mouth
  • Encourage regular sips of water or other favourite cold drinks. A small plant sprayer might help
  • Suck on ice cubes (perhaps made from a favourite drink), ice chips or ice lollies
  • Chew gum or suck on sweets to stimulate the production of saliva - as long as there is no choking risk
  • Moisturise lips with lip balm or a water-based gel such as Oralieve or KY-Jelly.
  • It is best to avoid petroleum-based jelly such as Vaseline as these can be drying.  (Vaseline and petroleum products are also best avoided if on oxygen therapy as this can be a fire hazard). 
  • Ask the doctor, nurse or pharmacist about saliva substitute sprays and gels
  • Ask the doctor or nurse to review medications as many medicines dry up saliva
Sore mouth
  • Avoid acidic foods such as citrus foods (e.g. lemons, oranges) and vinegar (pickles) and very spicy foods (e.g. curry)
  • Try drinking through a straw to stop liquids coming into contact with the sorest part of your mouth
  • Soothe the mouth with cold soft foods like custard, yoghurt, ice cream and jelly 
  • Allow hot food to cool down a little before eating
  • Try softer foods like porridge, pasta or fish with a sauce, egg dishes and milky puddings
  • Add gravy or sauces to moisten food
  • Avoid dry foods like biscuits, toast and crisps, but if these are enjoyed, chew them well and have plenty to drink
  • Ask the doctor, nurse or pharmacist about mouthwashes and painkillers. Salt water is a good mouthwash - just add half a teaspoon of salt to a cup of warm water
When to ask for more help

A defined area of soreness, redness or white patches may be a sign of infection (e.g. thrush or cold sores) which may need medication.

Let the doctor or nurse know if mouth problems mean that swallowing pills is difficult so that liquid or soluble painkillers can be prescribed. Liquid food supplements may help if it is too painful or difficult to eat solid food.

Dental visits or home dental visits can be very helpful if you are able to access these.

The video below from Hospice in the Weald demonstrates how to gently clean and moisturise someone's mouth towards the end of life

Recommended Resources

Hospice in the Weald Informed Guide to Mouth Care

Published 1st September 2024

Marie Curie - Mouth problems and mouth care

Published 18th April 2024

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Referrals may be made either by a patient or carer, or any professional directly involved in the patient’s care. Anyone making a referral must have the consent of the patient.

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Close

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Havens Hospices – havenshospices.rapidaccess@nhs.net (Southend, Castle Point and Rochford)

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T. 0800 0184 724

W. https://iasupport.org/about/about-ia/

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Close

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Close

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T. 01268 524973

W. https://www.stlukeshospice.com/lymphoedema-support

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Close

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Use the website address above to find your local services.

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Close

Information and support about stoma care. There is a 24 hour helpline.

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Close

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The team works with healthcare staff in all aspects of the prevention and management of acute and chronic wounds, with specific focus on those patients with hard to heal, complex and/or problematic wound care.

The Tissue Viability and Complex Leg Ulcer Services are part of the community service provided by this team.

Please compete the SystmOne referral form if available.

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EPUT Community Wound Care Referral form (DOCX)
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Close

Crohns and Colitis UK provides information about and helps to find support from others in the Crohn’s and Colitis community.

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Close

The team delivers nursing care to housebound patient's including wound care, assessment, palliative care, medication, pressure ulcer management.

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Close

Fair Havens Community Team provides assessment, support advice and care for people wishing to be cared  and supported in their locality community setting. Support is available for those in care homes.

The team is available 24 hours a day, at the end of the phone, for advice and support, to arrange additional home visits. Visits to Fair Havens Hub, the Rapid access service or In Patient Unit is also available.

Please watch this video for more information.

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Close

Referrals may be made either by a patient or carer, or any professional directly involved in the patient’s care. Anyone making a referral must have the consent of the patient.

Fair Havens In Patient Unit provides assessment and management of physical symptoms that are proving difficult to control, such as pain, nausea, vomiting, and breathlessness. Respite care is also available for short stays enabling their carers to rest and recuperate. There are 8 beds in the unit.

Some patients may only require a stay for a few days before going home again. Some people choose to receive hospice care several times during their illness, depending on their condition and their wishes.

Please watch this video for more information.

Hospice Rapid Access Service (HRAS)
Close

The Hospice Rapid Access Service team is a 24 hour services for people with a primary health need, who are rapidly deteriorating, and likely to be entering the terminal/palliative care phase of their illness. 

Havens Hospices, St Lukes Hospice and Farleigh Hospice work together as a collaborative to ensure consistency of care across all of Mid and South Essex.

The Hospices will assess the care needs of the patient and source care that meets the holistic needs of the patient.  This could be care in the home, on an in-patient unit, or in a Nursing Home.

Havens Hospices – havenshospices.rapidaccess@nhs.net (Southend, Castle Point and Rochford)

Farleigh Hospice -  contactteam.fh@nhs.net (Chelmsford, Maldon and the Dengie, Braintree and the surrounding areas)

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Close

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Close

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T. 0800 0184 724

W. https://iasupport.org/about/about-ia/

Ileostomy and Internal Pouch Association, known as IA, has been specialising in supporting people living with an ileostomy.

IA has not only an extensive network of local groups across the UK and Ireland but also the majority of volunteers are living life after surgery.

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Close

Little Havens provides specialist care and support for babies, children and young people requiring specialist in-patient care for symptom management, respite and end of life care.

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Close

LymphConnect is an online platform developed to help manage lymphoedema or lipoedema, understand more about the condition, share experiences and get support and advice.

 

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Close

The palliative care team aims to provide support and management of physical symptoms such as pain, and also provide psychological, social and spiritual care to patients and their families.

St Luke's Hospice South Essex Lymphoedema Service (SELS)
Close

St Luke's Hospice South Essex Lymphoedema Service (SELS)

T. 01268 524973

W. https://www.stlukeshospice.com/lymphoedema-support

St Luke's Hospice provides the specialist Lymphoedema care team could provide care to you if you are living with primary Lymphoedema, secondary Lymphoedema and Lipoedema. The team can provide clinical expertise, support and practical help for those with any these conditions and live across South Essex.

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