Caring for a breathless patient at home

Breathlessness is a very frightening symptom - and living with a breathless person can be very stressful.

Having some control over how you breathe, managing panic and some practical ways to cope with everyday activities can really help.

Anxiety and breathlessness are very linked - breathlessness can make you anxious - and when you are anxious you breathe more quickly and less efficiently.

Top tips
  • Control your breath - watch the Managing breathlessness video from St Christopher's 
  • Think about position to get maximum air into your lungs e.g. leaning forward may really help
  • A flow of air by your nose from a hand-held fan or open window can really help
  • A cool wet flannel over your nose may help
  • What helps you to calm - music, TV, relaxation - try some of the guided meditations below
  • Eat small regular meals that are soft and don't need too much chewing
  • Practical tip - a towelling dressing gown instead of drying with a towel can save energy after a shower
  • Do look at the helpful resources section below and review our page on Anxiety towards the end of life
Panic attacks

Think of 4 F's ! Fan, Flop muscles, Forward lean, Focus on long breath out

St Christopher's have also produced this video on how to manage a panic attack

To help you calm

St Margaret's Hospice have produced some brief videos to support guided relaxation and meditation

Helpful resources

St Christopher's have produced 4 very short videos (each less than 4 minutes) 

Meet and share with other people how to live better with breathlessness, you could try a Breathe Easy group if there is one near you

Recommended Resources

St Margaret's Hospice Care - Guided meditation

Published 10th April 2023

St Christopher's - Managing breathlessness

Published 1st April 2023

Hull York Medical School - A guide to living well with breathlessness

Published 1st January 2023

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Hospices

Adult Carer Core Support
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Adult Carer Core Support

T. 0300 303 1555

W. https://www.carersfirst.org.uk/

This free service has been commissioned to support adult carers. 

The offer includes:

  • One to one information and support to carers 
  • Support via phone, text, email or face to face visits including home visits
  • Groups and activities for carers
  • Help to get Carers Trust grants
  • Referrals to carefree breaks
  • Free SIM cards

The offer in Southend includes funding for breaks for carers, support to help carers to access their own appointments and one-off respite break funding.

Palliative care teams

Adult Carer Core Support
Close

Adult Carer Core Support

T. 0300 303 1555

W. https://www.carersfirst.org.uk/

This free service has been commissioned to support adult carers. 

The offer includes:

  • One to one information and support to carers 
  • Support via phone, text, email or face to face visits including home visits
  • Groups and activities for carers
  • Help to get Carers Trust grants
  • Referrals to carefree breaks
  • Free SIM cards

The offer in Southend includes funding for breaks for carers, support to help carers to access their own appointments and one-off respite break funding.

rapid access

Hospice Rapid Access Service (HRAS)
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Hospice Rapid Access Service (HRAS)

T. 01702 220350

W. https://www.havenshospices.org.uk/fair-havens/rapid-access/

The Hospice Rapid Access Service team is a 24 hour services for people with a primary health need, who are rapidly deteriorating, and likely to be entering the terminal/palliative care phase of their illness. 

Havens Hospices, St Lukes Hospice and Farleigh Hospice work together as a collaborative to ensure consistency of care across all of Mid and South Essex.

The Hospices will assess the care needs of the patient and source care that meets the holistic needs of the patient.  This could be care in the home, on an in-patient unit, or in a Nursing Home.

Havens Hospices – havenshospices.rapidaccess@nhs.net (Southend, Castle Point and Rochford)

Farleigh Hospice -  contactteam.fh@nhs.net (Chelmsford, Maldon and the Dengie, Braintree and the surrounding areas)

St Luke’s Hospice - Stlukes.oneresponse@nhs.net (Basildon and Thurrock)

St Francis Hospice Pastoral Care
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St Francis Hospice Pastoral Care

T. 01708 753319 ext. 2288

W. https://www.sfh.org.uk/carers-family-loved-ones

Support for people of all faiths and none are available  for patients, family, friends, and carers and the team are open and inclusive to all wishing to receive spiritual care.

Related Articles

7th June 2024

Anxiety towards the end of life: Information for patients and carers

27th February 2023

Caring at home - practical tips

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