Assessing cancer pain

Pain can be complex to assess and influenced by multiple factors. Total pain is a concept that includes physical, emotional and spiritual pain and is strongly influenced by practical issues and worries about the future.

This is a pragmatic summary for assessing a patient in the community. Please see the references below for further reading.

Red flags

Remember to consider bowel obstruction and spinal cord compression as causes of acute pain

Key clinical features to assess
  • Review underlying diagnosis (e.g. known site of tumours) and prexisting co-morbidities - ischaemic heart disease, osteoarthritis etc
  • Medication review. What analgesics are they currently taking? Are the medicines giving 24 hour pain relief and what helps most? 
  • Examination of the painful area to try and elucidate the cause
  • Remember referred pain.
  • Remember shingles which is common in people with advanced disease or on steroids
  • Assessment of mood and other key concerns
An initial approach to treatment
  • Treat according to likely cause (see table)
  • If cause of pain unknown investigate if appropriate and follow the WHO ladder
  • Remember antiemetics and laxatives if prescribing opioids
  • Review response to initial treatment

Common causes of pain and initial treatments: 

Type of pain Possible cause  An initial approach to treatment
Burning, shooting, tingling, altered sensation, dermatomal distribution Nerve pain (due to nerve compression, for example) See Neuropathic pain
Headache associated with nausea, worse on lying down, especially in the mornings Increased intracranial pressure from brain metastases Start on 6-8mgs Dexamethasone and discuss with oncologist
Pain worse on weight bearing or tender areas of bone Bone pain (e.g. due to metastasis or fracture) See Bone pain 

Abdominal pain

 

Constipation

Dyspepsia

Liver metastases

Peritoneal metastases (e.g bowel or gynaecological)

Bowel obstruction

Renal colic

Biliary colic

 See Abdominal pain 
Chest pain

Rib or pleural metastases 

Consider pre-existing cardiac and respiratory causes

 See Bone pain 

Recommended Resources

Macmillan - Managing cancer pain

Published 1st August 2022

Marie Curie - Pain in terminal illness

Published 11th May 2021

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Havens Hospices – havenshospices.rapidaccess@nhs.net (Southend, Castle Point and Rochford)

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W. https://iasupport.org/about/about-ia/

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  • Advance Care Planning clinics
  • Ascetic and Pleural drainage
  • Blood product transfusions
  • Clinical Nurse Specialist symptom management clinic
  • CVC line care
  • Intravenous fluids
  • IV Bisphosphonates infusions
  • IV Iron Infusions
  • Long term condition clinic – supporting heart failure, renal and liver conditions
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Use the website address above to find your local services.

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Havens Hospices, St Lukes Hospice and Farleigh Hospice work together as a collaborative to ensure consistency of care across all of Mid and South Essex.

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Visit the website to get help with paying bills, advice on benefits or treatment, or to just chat.

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T. 0800 090 2309

W. https://www.mariecurie.org.uk/

Marie Curie provide support for patients and carers through terminal illness.

Find information and support through the telephone helpline and online chat via their website.

Other services include Marie Curie nurses, Hospice care, helper and companion services.

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Close

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T. 01708 753319 ext. 2268

W. https://www.sfh.org.uk/patient-therapies

Complementary therapies can help control symptoms and help to deal with day-to-day life.

The therapies available are:

  • Aromatherapy
  • Massage
  • Reflexology
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St Francis Hospice Inpatient Unit
Close

St Francis Hospice Inpatient Unit

T. 01708 723593 / 01708 753319 ext. 2317

W. https://www.sfh.org.uk/the-hospice-ward

For patients requiring specialist in-patient care for symptom management and end of life care.

St Francis Hospice Patient Therapies
Close

St Francis Hospice Patient Therapies

T. 01708 753319  ext. 2220

W. https://www.sfh.org.uk/patient-therapies

The patient therapies team help with a range of symptoms through groups and individual sessions to help managing pain and symptoms.

The team consistes of:

  • Physiotheraphy
  • Occupational therapy
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Close

St Francis Hospice Referral Hub

T. 01708 758606

W. https://www.sfh.org.uk/make-a-referral

The St Francis Hospice's referral hub can be accessed by those facing a life limiting condition. 

Please refer a patient or making a self-referral to access hospice services.

St Francis Hospice Specialist Community and Crisis Support
Close

St Francis Hospice Specialist Community and Crisis Support

T. 01708 758643 / 01708 758610 ext. 2266

W. https://www.sfh.org.uk/crisis-support

The team are clinical specialists that are experts in pain and symptom control.

Urgent advice ia available 24 hours, 365 days a year.

St Luke's Hospice Clinical Outpatients
Close

St Luke's Hospice Clinical Outpatients team offers convenient, accessible and specialist key clinical procedures and palliative care, in a relaxed environment with appointments to meet your wellbeing and lifestyle needs. 

Key clinical procedures offered to outpatients:

  • Advance Care Planning clinics
  • Ascetic and Pleural drainage
  • Blood product transfusions
  • Clinical Nurse Specialist symptom management clinic
  • CVC line care
  • Intravenous fluids
  • IV Bisphosphonates infusions
  • IV Iron Infusions
  • Long term condition clinic – supporting heart failure, renal and liver conditions
  • Venepuncture

The service opening hours are 9.00am to 5.00pm.

St Luke's Hospice In Patient Unit
Close

St Luke's Hospice provide specialist in-patient care for symptom management and end of life care.        

There are a total of 7 beds and 1 emergency bed in Basildon.

Hospice Rapid Access Service (HRAS) with 6 Beds in Thurrock.

St Luke's Hospice Physiotherapy Support
Close

St Luke's Hospice Physiotherapy team can help when living with a life limiting illness.  Specialist Physiotherapists and Occupational Therapists will listen and assess to support independence and aid mobility to manage symptoms and positively impact quality of life and wellbeing.

Family and loved ones are also supported in their caring roles. Advice, guidance and techniques on how to safely move and handle someone when caring for them can be accessed through conversation with the Physiotherapy team.

The offer includes:

  • individual assessments to help provide appropriate equipment, e.g. mobility aids
  • personalised treatment plans including non-drug pain relief treatments and exercises to improve mobility, independence and balance
  • treatments to assist with shortness of breath, fatigue or insomnia
  • group exercise classes and confidence building

Rehabilitative care is also provided by our Occupational Therapy team. 

St Luke's Hospice South Essex Lymphoedema Service (SELS)
Close

St Luke's Hospice South Essex Lymphoedema Service (SELS)

T. 01268 524973

W. https://www.stlukeshospice.com/lymphoedema-support

St Luke's Hospice provides the specialist Lymphoedema care team could provide care to you if you are living with primary Lymphoedema, secondary Lymphoedema and Lipoedema. The team can provide clinical expertise, support and practical help for those with any these conditions and live across South Essex.

Tissue Viability Service: North East London Foundation Trust
Close

Tissue Viability Service: North East London Foundation Trust

T. 0300 300 1831 ext. 52798

This service is for any persons over the age of 18 and supports the management of complex wound care, via clinic based appointments, or homevisits depending on the need of the service user.

Palliative care teams

Breatheasy groups
Close

The support group is a way to learn more about living with a lung condition and share your experiences and stories with others.

British Lymphology Society
Close

The British Lymphology Society provides a directory of Lymphoedema treatment services.

Use the website address above to find your local services.

Colostomy UK
Close

Information and support about stoma care. There is a 24 hour helpline.

Crohns and Colitis UK
Close

Crohns and Colitis UK provides information about and helps to find support from others in the Crohn’s and Colitis community.

Hospice Rapid Access Service (HRAS)
Close

The Hospice Rapid Access Service team is a 24 hour services for people with a primary health need, who are rapidly deteriorating, and likely to be entering the terminal/palliative care phase of their illness. 

Havens Hospices, St Lukes Hospice and Farleigh Hospice work together as a collaborative to ensure consistency of care across all of Mid and South Essex.

The Hospices will assess the care needs of the patient and source care that meets the holistic needs of the patient.  This could be care in the home, on an in-patient unit, or in a Nursing Home.

Havens Hospices – havenshospices.rapidaccess@nhs.net (Southend, Castle Point and Rochford)

Farleigh Hospice -  contactteam.fh@nhs.net (Chelmsford, Maldon and the Dengie, Braintree and the surrounding areas)

St Luke’s Hospice - Stlukes.oneresponse@nhs.net (Basildon and Thurrock)

Ileostomy and Internal Pouch Association (IA)
Close

Ileostomy and Internal Pouch Association (IA)

T. 0800 0184 724

W. https://iasupport.org/about/about-ia/

Ileostomy and Internal Pouch Association, known as IA, has been specialising in supporting people living with an ileostomy.

IA has not only an extensive network of local groups across the UK and Ireland but also the majority of volunteers are living life after surgery.

Little Havens Hospice
Close

Little Havens provides specialist care and support for babies, children and young people requiring specialist in-patient care for symptom management, respite and end of life care.

LymphConnect
Close

LymphConnect is an online platform developed to help manage lymphoedema or lipoedema, understand more about the condition, share experiences and get support and advice.

 

Macmillan Cancer Support
Close

Macmillan provide cancer information, support and help everyone with cancer live life as fully as they can.

Visit the website to get help with paying bills, advice on benefits or treatment, or to just chat.

Marie Curie
Close

Marie Curie

T. 0800 090 2309

W. https://www.mariecurie.org.uk/

Marie Curie provide support for patients and carers through terminal illness.

Find information and support through the telephone helpline and online chat via their website.

Other services include Marie Curie nurses, Hospice care, helper and companion services.

St Francis Hospice at Home
Close

St Francis Hospice at Home

T. 01708 758603 / 01708 753319 Ext: 2342

W. https://www.sfh.org.uk/hospice-at-home

The Hospice at Home team offers blocks of care to people in their last few weeks of life. The blocks are usually between two and four hours and in some circumstances the blocks can run sequentially to provide a dying person with almost 24 hour care. The Hospice at Home team offers care for 7 days a week. 

St Francis Hospice Complementary Therapy
Close

St Francis Hospice Complementary Therapy

T. 01708 753319 ext. 2268

W. https://www.sfh.org.uk/patient-therapies

Complementary therapies can help control symptoms and help to deal with day-to-day life.

The therapies available are:

  • Aromatherapy
  • Massage
  • Reflexology
  • Mindfulness
  • Reiki
St Francis Hospice Inpatient Unit
Close

St Francis Hospice Inpatient Unit

T. 01708 723593 / 01708 753319 ext. 2317

W. https://www.sfh.org.uk/the-hospice-ward

For patients requiring specialist in-patient care for symptom management and end of life care.

St Francis Hospice Patient Therapies
Close

St Francis Hospice Patient Therapies

T. 01708 753319  ext. 2220

W. https://www.sfh.org.uk/patient-therapies

The patient therapies team help with a range of symptoms through groups and individual sessions to help managing pain and symptoms.

The team consistes of:

  • Physiotheraphy
  • Occupational therapy
  • Complementary therapy
St Francis Hospice Referral Hub
Close

St Francis Hospice Referral Hub

T. 01708 758606

W. https://www.sfh.org.uk/make-a-referral

The St Francis Hospice's referral hub can be accessed by those facing a life limiting condition. 

Please refer a patient or making a self-referral to access hospice services.

St Francis Hospice Specialist Community and Crisis Support
Close

St Francis Hospice Specialist Community and Crisis Support

T. 01708 758643 / 01708 758610 ext. 2266

W. https://www.sfh.org.uk/crisis-support

The team are clinical specialists that are experts in pain and symptom control.

Urgent advice ia available 24 hours, 365 days a year.

St Luke's Hospice Clinical Outpatients
Close

St Luke's Hospice Clinical Outpatients team offers convenient, accessible and specialist key clinical procedures and palliative care, in a relaxed environment with appointments to meet your wellbeing and lifestyle needs. 

Key clinical procedures offered to outpatients:

  • Advance Care Planning clinics
  • Ascetic and Pleural drainage
  • Blood product transfusions
  • Clinical Nurse Specialist symptom management clinic
  • CVC line care
  • Intravenous fluids
  • IV Bisphosphonates infusions
  • IV Iron Infusions
  • Long term condition clinic – supporting heart failure, renal and liver conditions
  • Venepuncture

The service opening hours are 9.00am to 5.00pm.

St Luke's Hospice Community Service
Close

St Luke's Hospice community service provides assessment, support advice and care for people wishing to be cared  and supported in their locality community setting. The team also provide support in care homes, the hospice's rapid access service and there is the provision of clinical nurse specialists.

St Luke's Hospice In Patient Unit
Close

St Luke's Hospice provide specialist in-patient care for symptom management and end of life care.        

There are a total of 7 beds and 1 emergency bed in Basildon.

Hospice Rapid Access Service (HRAS) with 6 Beds in Thurrock.

St Luke's Hospice Physiotherapy Support
Close

St Luke's Hospice Physiotherapy team can help when living with a life limiting illness.  Specialist Physiotherapists and Occupational Therapists will listen and assess to support independence and aid mobility to manage symptoms and positively impact quality of life and wellbeing.

Family and loved ones are also supported in their caring roles. Advice, guidance and techniques on how to safely move and handle someone when caring for them can be accessed through conversation with the Physiotherapy team.

The offer includes:

  • individual assessments to help provide appropriate equipment, e.g. mobility aids
  • personalised treatment plans including non-drug pain relief treatments and exercises to improve mobility, independence and balance
  • treatments to assist with shortness of breath, fatigue or insomnia
  • group exercise classes and confidence building

Rehabilitative care is also provided by our Occupational Therapy team. 

St Luke's Hospice South Essex Lymphoedema Service (SELS)
Close

St Luke's Hospice South Essex Lymphoedema Service (SELS)

T. 01268 524973

W. https://www.stlukeshospice.com/lymphoedema-support

St Luke's Hospice provides the specialist Lymphoedema care team could provide care to you if you are living with primary Lymphoedema, secondary Lymphoedema and Lipoedema. The team can provide clinical expertise, support and practical help for those with any these conditions and live across South Essex.

Tissue Viability Service: North East London Foundation Trust
Close

Tissue Viability Service: North East London Foundation Trust

T. 0300 300 1831 ext. 52798

This service is for any persons over the age of 18 and supports the management of complex wound care, via clinic based appointments, or homevisits depending on the need of the service user.

Pharmacies

Breatheasy groups
Close

The support group is a way to learn more about living with a lung condition and share your experiences and stories with others.

British Lymphology Society
Close

The British Lymphology Society provides a directory of Lymphoedema treatment services.

Use the website address above to find your local services.

Colostomy UK
Close

Information and support about stoma care. There is a 24 hour helpline.

Crohns and Colitis UK
Close

Crohns and Colitis UK provides information about and helps to find support from others in the Crohn’s and Colitis community.

Hospice Rapid Access Service (HRAS)
Close

The Hospice Rapid Access Service team is a 24 hour services for people with a primary health need, who are rapidly deteriorating, and likely to be entering the terminal/palliative care phase of their illness. 

Havens Hospices, St Lukes Hospice and Farleigh Hospice work together as a collaborative to ensure consistency of care across all of Mid and South Essex.

The Hospices will assess the care needs of the patient and source care that meets the holistic needs of the patient.  This could be care in the home, on an in-patient unit, or in a Nursing Home.

Havens Hospices – havenshospices.rapidaccess@nhs.net (Southend, Castle Point and Rochford)

Farleigh Hospice -  contactteam.fh@nhs.net (Chelmsford, Maldon and the Dengie, Braintree and the surrounding areas)

St Luke’s Hospice - Stlukes.oneresponse@nhs.net (Basildon and Thurrock)

Ileostomy and Internal Pouch Association (IA)
Close

Ileostomy and Internal Pouch Association (IA)

T. 0800 0184 724

W. https://iasupport.org/about/about-ia/

Ileostomy and Internal Pouch Association, known as IA, has been specialising in supporting people living with an ileostomy.

IA has not only an extensive network of local groups across the UK and Ireland but also the majority of volunteers are living life after surgery.

Little Havens Hospice
Close

Little Havens provides specialist care and support for babies, children and young people requiring specialist in-patient care for symptom management, respite and end of life care.

LymphConnect
Close

LymphConnect is an online platform developed to help manage lymphoedema or lipoedema, understand more about the condition, share experiences and get support and advice.

 

St Francis Hospice at Home
Close

St Francis Hospice at Home

T. 01708 758603 / 01708 753319 Ext: 2342

W. https://www.sfh.org.uk/hospice-at-home

The Hospice at Home team offers blocks of care to people in their last few weeks of life. The blocks are usually between two and four hours and in some circumstances the blocks can run sequentially to provide a dying person with almost 24 hour care. The Hospice at Home team offers care for 7 days a week. 

St Francis Hospice Complementary Therapy
Close

St Francis Hospice Complementary Therapy

T. 01708 753319 ext. 2268

W. https://www.sfh.org.uk/patient-therapies

Complementary therapies can help control symptoms and help to deal with day-to-day life.

The therapies available are:

  • Aromatherapy
  • Massage
  • Reflexology
  • Mindfulness
  • Reiki
St Francis Hospice Inpatient Unit
Close

St Francis Hospice Inpatient Unit

T. 01708 723593 / 01708 753319 ext. 2317

W. https://www.sfh.org.uk/the-hospice-ward

For patients requiring specialist in-patient care for symptom management and end of life care.

St Francis Hospice Patient Therapies
Close

St Francis Hospice Patient Therapies

T. 01708 753319  ext. 2220

W. https://www.sfh.org.uk/patient-therapies

The patient therapies team help with a range of symptoms through groups and individual sessions to help managing pain and symptoms.

The team consistes of:

  • Physiotheraphy
  • Occupational therapy
  • Complementary therapy
St Francis Hospice Referral Hub
Close

St Francis Hospice Referral Hub

T. 01708 758606

W. https://www.sfh.org.uk/make-a-referral

The St Francis Hospice's referral hub can be accessed by those facing a life limiting condition. 

Please refer a patient or making a self-referral to access hospice services.

St Francis Hospice Specialist Community and Crisis Support
Close

St Francis Hospice Specialist Community and Crisis Support

T. 01708 758643 / 01708 758610 ext. 2266

W. https://www.sfh.org.uk/crisis-support

The team are clinical specialists that are experts in pain and symptom control.

Urgent advice ia available 24 hours, 365 days a year.

St Luke's Hospice Clinical Outpatients
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St Luke's Hospice Clinical Outpatients team offers convenient, accessible and specialist key clinical procedures and palliative care, in a relaxed environment with appointments to meet your wellbeing and lifestyle needs. 

Key clinical procedures offered to outpatients:

  • Advance Care Planning clinics
  • Ascetic and Pleural drainage
  • Blood product transfusions
  • Clinical Nurse Specialist symptom management clinic
  • CVC line care
  • Intravenous fluids
  • IV Bisphosphonates infusions
  • IV Iron Infusions
  • Long term condition clinic – supporting heart failure, renal and liver conditions
  • Venepuncture

The service opening hours are 9.00am to 5.00pm.

St Luke's Hospice Community Service
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St Luke's Hospice community service provides assessment, support advice and care for people wishing to be cared  and supported in their locality community setting. The team also provide support in care homes, the hospice's rapid access service and there is the provision of clinical nurse specialists.

St Luke's Hospice In Patient Unit
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St Luke's Hospice provide specialist in-patient care for symptom management and end of life care.        

There are a total of 7 beds and 1 emergency bed in Basildon.

Hospice Rapid Access Service (HRAS) with 6 Beds in Thurrock.

St Luke's Hospice Physiotherapy Support
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St Luke's Hospice Physiotherapy team can help when living with a life limiting illness.  Specialist Physiotherapists and Occupational Therapists will listen and assess to support independence and aid mobility to manage symptoms and positively impact quality of life and wellbeing.

Family and loved ones are also supported in their caring roles. Advice, guidance and techniques on how to safely move and handle someone when caring for them can be accessed through conversation with the Physiotherapy team.

The offer includes:

  • individual assessments to help provide appropriate equipment, e.g. mobility aids
  • personalised treatment plans including non-drug pain relief treatments and exercises to improve mobility, independence and balance
  • treatments to assist with shortness of breath, fatigue or insomnia
  • group exercise classes and confidence building

Rehabilitative care is also provided by our Occupational Therapy team. 

St Luke's Hospice South Essex Lymphoedema Service (SELS)
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St Luke's Hospice South Essex Lymphoedema Service (SELS)

T. 01268 524973

W. https://www.stlukeshospice.com/lymphoedema-support

St Luke's Hospice provides the specialist Lymphoedema care team could provide care to you if you are living with primary Lymphoedema, secondary Lymphoedema and Lipoedema. The team can provide clinical expertise, support and practical help for those with any these conditions and live across South Essex.

Tissue Viability Service: North East London Foundation Trust
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Tissue Viability Service: North East London Foundation Trust

T. 0300 300 1831 ext. 52798

This service is for any persons over the age of 18 and supports the management of complex wound care, via clinic based appointments, or homevisits depending on the need of the service user.

Cancer services

British Lymphology Society
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The British Lymphology Society provides a directory of Lymphoedema treatment services.

Use the website address above to find your local services.

LymphConnect
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LymphConnect is an online platform developed to help manage lymphoedema or lipoedema, understand more about the condition, share experiences and get support and advice.

 

Macmillan Cancer Support
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Macmillan provide cancer information, support and help everyone with cancer live life as fully as they can.

Visit the website to get help with paying bills, advice on benefits or treatment, or to just chat.

Marie Curie
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Marie Curie

T. 0800 090 2309

W. https://www.mariecurie.org.uk/

Marie Curie provide support for patients and carers through terminal illness.

Find information and support through the telephone helpline and online chat via their website.

Other services include Marie Curie nurses, Hospice care, helper and companion services.

St Luke's Hospice South Essex Lymphoedema Service (SELS)
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St Luke's Hospice South Essex Lymphoedema Service (SELS)

T. 01268 524973

W. https://www.stlukeshospice.com/lymphoedema-support

St Luke's Hospice provides the specialist Lymphoedema care team could provide care to you if you are living with primary Lymphoedema, secondary Lymphoedema and Lipoedema. The team can provide clinical expertise, support and practical help for those with any these conditions and live across South Essex.

Tissue Viability Service: North East London Foundation Trust
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Tissue Viability Service: North East London Foundation Trust

T. 0300 300 1831 ext. 52798

This service is for any persons over the age of 18 and supports the management of complex wound care, via clinic based appointments, or homevisits depending on the need of the service user.

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